Jaimz's first Biopsy

- October 2nd 2002 (added to this Site October 3rd 2002)

October 2nd 2002
Because we hope Jaimz will hardly notice he won't have breakfast this morning, we don't follow our normal routine. We wake Jaimz up, dress him quickly, get his & our stuff and then leave for the hospital. Jaimz is always excited to go somewhere by car, so he doesn't complain that he's hungry.
After arriving at the hospital we are asked to wait in the waiting room which Jaimz doesn't mind at all, cos he loves the slide in there!
After a little while, a very nice male nurse calls on us (Jaimz starts immediately calling him grandpa) and takes us to the 'child's day care' department. After dressing Jaimz in his hospital pajamas it's time for his IV.
He's a little uncomfortable because I have to hold him tight, but he doesn't cry when the needle enters his arm and in fact seems to be fascinated by the process of drawing his blood (they need 5 or 6 tubes). After that the nurse splints and bandages Jaimz's arm and again Jaimz doesn't seem to care much... He can't wait for the nurse to finish so he can get back to playing!
Jaimz at the hospital

Of course he doesn't like the rectal medicine he gets (to avoid too much slime in his throat while he's asleep)... but this doesn't stop him from liking nurse 'grandpa' and from following him around the hospital floor.

At 10.15 it's time for Jaimz & me to go to the OR. Jaimz loves the wheeled bed & the rough ride the nurse gives him and when I've got to put on special OR clothes & a hat he even laughs at me ... and at the OR personnel he later sees and who are wearing those same strange clothes.
He doesn't really like the stickers for the electrodes, that get attached to his chest but there are so many interesting things to see in the OR that he forgets about them soon.
The anesthetist comes to put Jaimz under and in less than one second he's asleep and I unfortunately have to leave him.
I had been told the whole procedure would take about 15 to 20 minutes, so after almost one hour I'm very afraid something has gone wrong and I'm just about to start making some trouble, when a nurse comes to get me.
When I see Jaimz I'm so happy I almost cry. Jaimz himself cries a little cos he's confused and doesn't know what has happened or where he is. As soon as he sees me it's OK though, I hug & kiss him and on my lap he slowly wakes up.
A nurse tells me that they had to try 3 times before they were able to get enough bone marrow and that, because Jaimz has a bad nose cold, they woke Jaimz up more slowly than normal... so that's why it took so much time.
When Jaimz is awake and the nurse is satisfied he is well, they call nurse 'grandpa' who comes and takes us back to Jaimz's daddy, who is very worried, cos no one told him all's well with Jaimz...
As soon as Jaimz notices his dad, he stands up in his bed and needs a big hug from dad as well. After a couple of minutes Jaimz is allowed to drink some water and eat a few biscuits and then he really wants to get out of bed and play with nurse 'grandpa'...
We are so happy that he's so well and soooo proud of him!

The Doctor who did the biopsy comes to sees us and explains why he has 3 wounds. She says the 3rd biopsy did go well and they were able to get all the bone marrow the need. In 8 days she'll phone us with the results.

His regular Doctor comes to see us at 12.30 for a little talk, cos I e-mailed him I had a few questions. A mother from the SDS e-mail group suggested sign language for babies. Her son learned to talk very will because he first learned sign language. We weren't too sure if this would work for Jaimz as well, cos we were afraid that once Jaimz would master those signs he would simply give up trying to speak at all. His Dr. agrees with us. In fact, he tells us, nowadays doctors believe that even for deaf people it might be better to learn to talk before they learn sign language. So Jaimz's Dr. and we agree on speech therapy and we hope that soon he'll be talking our heads off.
I also inform about the DR's opinion on fishoil/Omega 3 fat and he tells me that there still is no medical proof that it might do Jaimz any good.

After that we say good-bye to nurse 'grandpa' (who gives Jaimz a 'diploma for bravery') and it's time to finally go home, where we arrive at 1.30 PM.
A lot of phone calls later (everybody's informing after Jaimz) all 3 of us take it easy and watch Monsters Inc. (again, must be the 30th time Jaimz wants to see this)...
Jaimz 'tells' us he doesn't have any pain, and is feeling all right again. So it seems his day at the hospital was harder on us than it was on him. Jaimz even had a lot of fun most of the time! (And got some presents too...)

The next day Jaimz complains a little about pain in both his legs and he walks around with a stiff leg. He doesn't mention his other wounds and after a couple of hours sleep, he 'tells' me his leg doesn't hurt any longer. He still has a cold though.

We're very happy the day went so well for Jaimz and very proud he was so brave, and we hope the test results will be good as well. At the hospital we made a few photos of Jaimz having fun and of him and his new friend, nurse 'grandpa' which we plan to show him as soon as they're developed, so we can talk about his day at the hospital a few times and make it easier for him to remember that it was fun as well.... so he hopefully won't be afraid for his next biopsy.

Christel

   
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